by Justin Kirk | Mar 16, 2023
After four years at Notre Dame, Dillan transferred to Florida State prior to the 2021 season. … Following a game his freshman season at Notre Dame in 2017, Dillan crossed paths with a then 14-year-old rare disease patient. Fate would turn this meeting into a profound...
by Justin Kirk | Mar 16, 2023
At the age of 3, Zeke was diagnosed (by a team of 25 neurologists) with opsoclonus-myoclonus syndrome (OMS), an extremely rare disorder of the nervous system that affects just one in 10 million people annually. Zeke was confined to a wheelchair and doctors told him he...
by Justin Kirk | Mar 16, 2023
Going to the United State Military Academy at West Point wasn’t Tyler’s first choice out of high school, but going to West Point might have saved his life. The summer of his second year, Tyler broke his foot in basic training, the second time he broke the same bone in...
by Justin Kirk | Mar 16, 2023
The fact Sam is playing college football is a testament to his drive and determination. Nearly four years ago, as a senior in high school, Sam was overcome with what a neurologist diagnosed as Guillain-Barre Syndrome, a rare disorder where the body’s immune system...
by Justin Kirk | Mar 16, 2023
For three years Peter has been inspiring the Rare Disease Community in a leadership role of the Northwestern Chapter of Uplifting Athletes. As the Chapter President, Peter has gone above and beyond expectations to create a deeper connection between student-athletes...
