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Mission:
Harness the power of sport to build a community that invests in the lives of people impacted by rare diseases.


Vision:
No person impacted by a rare disease feels alone and everyone is inspired with hope for the future.

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Notre Dame

Chapter Established in 2012
Life Time Total $79,885.58

Uplifting Athletes Mission

Harness the power of sport to build a community that invests in the lives of people impacted by rare diseases.

Notre Dame

Chapter Leadership

Current Chapter Leaders

Drew White
President
Drew White
President

Drew White participated in the inaugural Notre Dame Chapter Lift For Life in 2018 and was inspired to take on a bigger role for the Fighting Irish. He volunteered to become a Chapter Leader and attended the Leadership Development Conference in January, 2019.ย  Drew is motivated by the rare disease cause and wants to make a difference. He was instrumental in Notre Dameโ€™s record-breaking Lift For Life in 2019 and is inspired to use his platform to give a voice to the Rare Disease Community.

A marquee linebacker recruit from St. Thomas Aquinas High School in Boca Raton, FL, Drew spent his freshman year on the scout team before appearing in four games and totaling eight tackles in 2018. Over the next two seasons, he started 25 games at linebacker for the Irish and recorded 136 tackles. Drew tied for the team lead in tackles with 80 in 2019 and posted a career-high nine tackles for a loss in 2020.

Official Notre Dame Bio

JD Bertrand
Vice President
JD Bertrand
Vice President

JD Bertrand stepped into a leadership role for the Notre Dame Chapter after his first season with the Fighting Irish. He attended the Leadership Development Conference in 2020 and is motivated by the rare disease cause to make a difference and support the Rare Disease Community.

The linebacker from Georgia played four games on special teams for Notre Dame as a true freshman in 2019 and saw his first action at linebacker in 2020 with a pair of tackles in a victory over South Florida. JD appeared in eight games in 2020, including the College Football Playoff semifinal in the Rose Bowl.

Official Notre Dame Bio

Uplifting Athletes Programs

Rare Disease Research

Leverage public interest to cultivate resources that accelerate scientific advancements for rare diseases

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Uplifting Leaders

Develops social influencers into leaders that make a positiveย impact on the rare disease community

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Uplifting Leaders
Rare Disease Awareness

Shares the platform of sport with the rare disease cause and raises it as a national priority

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Uplifting Experiences

Creates special moments that enrich the lives of rare disease patients and their loved ones

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Uplifting Experiences

Fundraising Initiatives

Notre Dame Football Lift For Life 2022
$11,496.50 Amount Raised
10 Campaigns
View Results
Notre Dame Touchdown Pledge Drive 2015
$440.00 Amount Raised
Campaigns
View Results

News & Past Events

#WeTackleRare

Wed, 02/08/2023 - 14:00
@ UpliftingAth
Thank you to everyone who helped make the ๐Ÿฎ๐Ÿฌ๐Ÿฎ๐Ÿฏ ๐—ฌ๐—ข๐—จ๐—ก๐—š ๐—œ๐—ก๐—ฉ๐—˜๐—ฆ๐—ง๐—œ๐—š๐—”๐—ง๐—ข๐—ฅ ๐——๐—ฅ๐—”๐—™๐—ง a truly memorable one! #WeTackleRare
Sat, 02/04/2023 - 19:44
@ UpliftingAth
RT @CameronLynch50: ๐ŸŽค Emcee for the @UpliftingAth #YoungInvestigatorDraft to raise awareness and celebrate for rare disease research ๐Ÿ”ฌ! Tunโ€ฆ
Sat, 02/04/2023 - 19:43
@ UpliftingAth
Elevating, celebrating, and funding game-changing researchers #YID23 #WeTackleRare
Sat, 02/04/2023 - 18:16
@ UpliftingAth
๐Ÿฎ๐Ÿฌ๐Ÿฎ๐Ÿฏ ๐—ฌ๐—ข๐—จ๐—ก๐—š ๐—œ๐—ก๐—ฉ๐—˜๐—ฆ๐—ง๐—œ๐—š๐—”๐—ง๐—ข๐—ฅ ๐——๐—ฅ๐—”๐—™๐—ง Almost showtime here in Philadelphia! The draft is set to begin at 7:00pm LIVESTRโ€ฆ
Sat, 02/04/2023 - 17:37
@ UpliftingAth
Itโ€™s game time! The 2023 Young Investigator Draft is happening now. #WeTackleRare #YID23
Sat, 02/04/2023 - 17:08
@ UpliftingAth
Thank you to our 2023 Young Investigator Draft Sponsors! Weโ€™re beyond grateful for your support and commitment to oโ€ฆ
Tue, 01/10/2023 - 15:54
@ UpliftingAth
๐๐„๐–๐’: 10 Emerging Scientists Score Research Grants Totaling $200,000 Elite athletes and scientists will stand shouโ€ฆ
Tue, 01/10/2023 - 15:25
@ UpliftingAth
@PennMedNews @PennMedicine Thank you for sharing our news and congratulations to Dr. Sande, Dr. Mumau, and Dr. Felix! #WeTackleRare
Tue, 01/10/2023 - 15:23
@ UpliftingAth
@RarePOV @GRIN2Bsyndrome @TeamTelomereInc @CureCastleman @curestxbp1 @CureHIBM Thank you for sharing our news today @RarePOV! #WeTackleRare
Mon, 01/09/2023 - 10:58
@ UpliftingAth
@UMSOMPostdocs Thank you for helping promote this awesome event! #WeTackleRare For those interested in attending tโ€ฆ
Fri, 01/06/2023 - 17:40
@ UpliftingAth
This week, we are celebrating the 40th anniversary of the Orphan Drug Act and the progress it has made for developiโ€ฆ
Wed, 01/04/2023 - 14:24
@ UpliftingAth
๐‘ฌ๐’‚๐’“๐’๐’š ๐‘ฉ๐’Š๐’“๐’… ๐‘ท๐’“๐’Š๐’„๐’Š๐’๐’ˆ ๐‘ฌ๐’™๐’‘๐’Š๐’“๐’†๐’” ๐‘ป๐’๐’…๐’‚๐’š Save up to 35% for the '23 Young Investigator Draft! Join us for a night which honโ€ฆ
Tue, 01/03/2023 - 15:06
@ UpliftingAth
@BuffaloBills Our thoughts are with the @HamlinIsland family and @BuffaloBills. ๐Ÿ’™
Fri, 12/30/2022 - 18:02
@ UpliftingAth
Uplifting Experiences put our mission into motion. In November, @RileyTDixon92 and the @RamsNFL welcomed a couple oโ€ฆ
Thu, 12/29/2022 - 13:14
@ UpliftingAth
@JDBertrand1 @Allstate @WeAreAFCA @dosomething @NDFootball Congratulations @JDBertrand1! We're proud to have you onโ€ฆ
Tue, 12/27/2022 - 16:12
@ UpliftingAth
๐—จ๐—ฝ๐—น๐—ถ๐—ณ๐˜๐—ถ๐—ป๐—ด ๐—ฆ๐˜๐—ผ๐—ฟ๐˜† Matthew Breeggemann is combining his experience as a rare kidney patient and his expertise as a kidโ€ฆ
Tue, 12/20/2022 - 15:26
@ UpliftingAth
This year we've expanded our programs and grown our community to support people impacted by #RareDiseases in astronโ€ฆ
Fri, 12/16/2022 - 10:12
@ UpliftingAth
@NaomiDirckx Thank you!

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