Leverage public interest to cultivate resources that accelerate scientific advancements for rare diseases
Northwestern
Chapter Leadership
Current Chapter Leaders

Peter Snodgrass
President

Joe Spivak
Vice President
Uplifting Athletes Programs
Develops social influencers into leaders that make a positiveΒ impact on the rare disease community

Shares the platform of sport with the rare disease cause and raises it as a national priority

Creates special moments that enrich the lives of rare disease patients and their loved ones
